Disability and Autism group discussionAcross north Cumbria there is lots of work being done to support people with learning disabilities and autism. Examples of this are highlighted below.

Further useful resources and links are available here including projects, videos (see above to scroll through), guides, and many other links.

Flu Resources

The North East & Cumbria Learning Disability Network in partnership with Skills for People have developed and introduced a new programme called ‘Get Well for Winter’ to support and protect people with learning disability in the winter months.

As part of this - The North East & Cumbria Learning Disability Network with the Twisting Ducks Theatre Company have made several ‘myth busting’ films below about the flu jab for people with learning disability to help people with learning disability protect themselves and others from flu this winter.

Annual Health Check and Flu Film:

1. Who should get the flu jab?

2. How do I get the flu jab?

3. Why do I need to get the flu jab?

4. Can the flu jab give you the flu?

5. Does the flu jab hurt?

6. How can I help other people from catching the flu?

This easy read poster is to encourage people with a learning disability to be vaccinated against flu this winter. A supporting easy read leaflet from Public Health England is also available.

The video below is a short webinar film about the flu vaccination for people with a learning disability and autistic people who may be eligible for a vaccination. The film covers why it is important, who is eligible for a free vaccine, reasonable adjustments, consent and decision making. A parent of a 16-year-old with a learning disability describes how primary care can support families to make sure their relatives can have their vaccination.

E-mail: cuccg.mhcommissioning@nhs.net

NHS North Cumbria CCG is the host commissioner and has oversight for:

  • Acorn Unit/Edenwood at Carleton Clinic
  • Yewdale at West Cumberland Hospital



What is autism?

Autistic people may act in a different way to other people

Autistic people may:

  • find it hard to communicate and interact with other people
  • find it hard to understand how other people think or feel
  • find things like bright lights or loud noises overwhelming, stressful or uncomfortable
  • get anxious or upset about unfamiliar situations and social events
  • take longer to understand information
  • do or think the same things over and over

If you think you or your child may be autistic, get advice about the signs of autism.

Autism is not an illness

Being autistic does not mean you have an illness or disease. It means your brain works in a different way from other people.

It's something you're born with or first appears when you're very young.

If you're autistic, you're autistic your whole life.

Autism is not a medical condition with treatments or a "cure". But some people need support to help them with certain things.

Autistic people can live a full life

Being autistic does not have to stop you having a good life.

Like everyone, autistic people have things they're good at as well as things they struggle with.

Being autistic does not mean you can never make friends, have relationships or get a job. But you might need extra help with these things.

Autism is different for everyone

Autism is a spectrum. This means everybody with autism is different.

Some autistic people need little or no support. Others may need help from a parent or carer every day.

Some people use other names for autism

There are other names for autism used by some people, such as:

  • autism spectrum disorder (ASD) – the medical name for autism
  • autism spectrum condition (ASC) – used instead of ASD by some people
  • Asperger's (or Asperger syndrome) – used by some people to describe autistic people with average or above average intelligence

It's not clear what causes autism

Nobody knows what causes autism, or if it has a cause.

It can affect people in the same family. So it may sometimes be passed on to a child by their parents.

Autism is not caused by:

  • bad parenting
  • vaccines, such as the MMR vaccine
  • diet
  • an infection you can spread to other people

Autistic people can have any level of intelligence

Some autistic people have average or above average intelligence.

Some autistic people have a learning disability. This means they may find it hard to look after themselves and need help with daily life.

Autistic people may have other conditions

Autistic people often have other conditions, like:

  • attention deficit hyperactivity disorder (ADHD) or dyslexia
  • anxiety or depression
  • epilepsy


- Continuing Health Care (CHC) web page
- Public Health Budgets (PHBs) web page

The Continuing Health Care team works with individuals who have learning disability and complex health conditions to assess whether they are eligible for Continuing Health Care (CHC) NHS funding.

More information 

On receipt of a positive CHC checklist, Case Coordinators (CCG Nurses) and Learning Disability Community Teams, work with the individual and their family/representatives to organise a meeting (Decision Support Tool) and establish whether or not an individual has primary health needs.

Following this meeting, Case Coordinators liaise with the local authority and families to ensure individuals with learning disabilities receive the best possible person centred care. Children with primary health needs are assessed for eligibility for NHS continuing care.

Children’s health needs are regularly reviewed and reassessed during their transition to adulthood to determine whether they will be eligible for CHC funding when they become eighteen. The CHC team work closely with the local authority to ensure children with complex health needs are supported through their transition and continue to access the care and support they require at all times.

Individuals who live in care homes, and are not assessed as eligible for CHC funding, may be entitled to Funded Nursing Care (FNC), the CHC team can assess an individual’s eligibility for FNC and coordinate/review care packages to ensure they are safe, person centred and clinically appropriate. Individuals may require palliative care if they become very unwell and appropriate clinicians can fast track CHC funding to coordinate safe and clinically appropriate end of life care.

The CHC team would facilitate this process and agree funding according to referral protocol and framework guidance.

The CHC Learning Disability Team work between the hours of 8am-5pm Monday to Friday.

Call 01228 608331 if you need any further information on CHC Learning Disability.

Useful CHC links

Stop and Watch is a tool which everyone can use to spot the signs that a person’s condition is deteriorating.

To find out about the background of the campaign and how it was developed view the Stop and Watch campaign page here


transforming care stop and watch poster resource

As part of Learning Disabilities Awareness Week 2019 the Clinical Commissioning Group (CCG) had the opportunity to be part of the #PeopleFirstTakeover

This gives people with a learning disability the opportunity to have real life experience of different job roles, learn new skills, and build aspirations.

We had a great morning as Nicky and Stef spent time with our Director of Nursing and Quality Anna Stabler, along with Chairman Jon Rush, Chief Operating Officer Peter Rooney, and our Engagement Team.

#LDWeek19 #LearningDisabilitiesAwarenessWeek2019

Montage related to Learning Disabilities Awareness week in 2019

People First thanks for involvement letter